The Autoimmune Registry supports several clinical trials, which the FDA requires to approve new medications and treatments. We use Patient Navigators, who are autoimmune disease patients, to help support and represent the interests of participants entering the studies. Learn more about the trials here.
Events:
Autoimmune Registry is hosting our Clinical Trials Webinar on October 7th, from 4-5 pm EST that explores new technologies used in autoimmune disease clinical trials. Specifically, we will focus on CAR-T therapy to give patients a better understanding of the technology involved. We’ve invited Dr. Dimachkie and Dr. Pasnoor to present their research. Register here!
Established in 2016, the Autoimmune Registry is modelled after the National Cancer Registry, which provides data on cancer incidence, demographic background, and survival rates in the United States. Before us, no such registry existed for patients of autoimmune diseases, who often have no idea how their diseases will advance and what the rates are for developing comorbid autoimmune diseases or cancers. Our goal is to collect these types of data so we can have a better understanding of autoimmune diseases, the populations they affect, their risks for comorbid diseases, and their natural progression over time.
At the Autoimmune Registry, we are driven by a mission to fill these gaps and advance research in the field of autoimmune diseases. We do so by 1) collecting and analyzing data, 2) connecting patients with researchers and clinical trials, and 3) partnering with other patient advocacy groups to raise awareness on the impact of autoimmune diseases.
Featured work:
The Autoimmune Registry is working with the NIH’s All of Us platform and has been featured for its work studying the prevalence and incidence of autoimmune diseases.